Seminar 13 Dec 2018. Call to action & Kick-off
The event was a great knowledge sharing experience.
The summary can be found here. The program and linked called to actions and presentations below.
The data driven lab development is being intensified by the fact that patients and potentially research respondents will have the data portability right to get a copy of their (raw) data copy (blue button). The GDPR (European Privacy Act - AVG) enforces any institution that has privacy sensitive (clinical and research) data to demonstrate that they have a data sharing process as well as their information security in place and auditable. We applied the FAIR Data Principles (Findable, Accessible, Interoperable, Reusable) to a data driven lab for genetic tests. The FAIR principles have since received worldwide recognition by various organizations including National Institutes of Health (NIH), the European Commission and industry suppliers as a useful framework for thinking about sharing data in a way that will enable maximum use and reuse across multiple stakeholders including Citizens (patients) Health insurers, doctors, pharmacists, Research Grant Organizations, Ministry of Health, Pharma and Biotech Industry. Below is the program to make this happen!
Data driven health lab Call to Action
| Data driven health lab | |
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Clinical Genetics ErasmusMC |
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ErasmusMC |
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Director Western Europe Health Sector, Microsoft. |
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Senior domain expert in LifeScience GDPR processes |
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The changing role of the CIO in the data driven health society. |
CIO Ministry of Health |
| Genetic Data in Personalized Health Care |
Complex Genetics ErasmusMC |
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The changing role of Radiology in the data driven AI future. |
Drs. Herman Pieterman Ad hoc replacement Prof. Wiro Niessen.
Radiologist/head of patientcare RadiologyErasmusMC |
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Trusted collaboration using Shared Standard Operating Procedures across organizations. |
Peter Walgemoed & Egbert Heuvelman Carelliance/ AuthorE |
| The importance of pre-competitive collaboration in data-driven health-care. |
Pistoia Alliance |
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Co-operatives Panel Discussion. Technologies. Blockchain, Cloud Public private partnerships. Health lab co-operatives. |
Martin Slijkhuis Public Safety & National Security agencies Europe, Microsoft Rob Grim Blockchain expert, EDSC Erasmus University Rotterdam Erik van Oorschot, Medical Delta Peter Walgemoed |
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Data driven doctors, researchers and citizens. |
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Data driven health analytics. Postponed to February. |
Eric Little Osthus |
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Peter Boogaard |
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